The fourth podcast in the ACAMH series I was commissioned to produce on Tourettes Syndrome. The focus of this podcast is on cultural differences in tics and tic disorders.
Original article and transcript available here.
Guest Panelist, 12 August 2020
Guest Panelist, 12 August 2020
In this podcast, Dr Seonaid Anderson and Helen Eadie, of Tourettes Action, define Tourettes Syndrome and expand on its impact. Together with Jo Carlowe, psychology journalist, they explore the next steps for raising identification, awareness, and positive outcomes.
Introduction - what we already know - treatment - areas of uncertainty - What's in the pipeline?
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Contributing author: “Barriers to improving access to therapy treatment for tics in the UK”
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Thanks to ACAMH as I discuss ADHD and Tic Disorders in another In Conversation podcast this time joined by Professor Chris Hollis. Chris is leading a research team working on a research project about ADHD medication and Tics. The focus of this podcast is on this research project, called The SATURN Trial. Discussion points include: Definition of Tics and ADHD. Potential challenges of differentiating between tics from a Tic Disorder, such as Tourette Syndrome, from other movements from conditions such as chorea dystonia myoclonus. Differentiating between stimming movements and tics. The effectiveness of non-stimulant medication in treating the symptoms of ADHD. Impact of the ongoing shortage of ADHD medication on patients. Why people should be encouraged to get involved in this research and the clinical implications from this research. To listen
What is the story behind the BTTI (The Behavioural Therapy for tics Institute)? Our training is recognised as a preferred NHS supplier of training and is now listed in the ‘bible’ the National NHS Trust procurement directory. We look forward to helping you arrange single or multiple staff on this training in 2024 https://www.neuro-diverse.org/btti
I have been part of a team of people who have produced ananimation with Woven Ink, educational professionals, charity representatives,researchers and lived experience advocates including Paul Stevenson, EmmaMcNally, Marie Ralph, Dr Seonaid Anderson, Daniel Jones and Dr JenniferSalvage.
We are immensely proud of this coproduced piece of work,which we have dedicated to those with tics who have lost their lives tosuicide.
Our aim is to share this video widely to persuade thosedecision and policy makers to support us in making changes to healthcareguidelines for Tourette Syndrome.
We want as many people as possibleto share the videos on Facebook, Twitter, Instagram, LinkedIn and TikTok usingthe hashtag #TourettesHearUs
We are also asking for people totag in their MP and other people local to them who can bring about changewithin the NHS.
We are hoping this animation mayhelp us be heard if we all come together, so any help is much appreciated
Please share with others in the TScommunity
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